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28 February 2016 @ 03:41 pm
It's been a rough couple of months, and I'm getting a little bored now.  
Friends, Romans, Fl*sters, I’m afraid this is going to be a rant at the universe, so please feel free to wander on by.
Last July I developed chronic heartburn, nothing I ate was settling and I felt like crap. Months have gone by and the doctors have prescribed various anti-acids and PPI (Proton Pump Inhibitors) they seem to work for a couple of weeks and then I’m back to square one.  I’ve even had an endoscopy and all the gastric specialist has said is there is some inflammation in the stomach, and if I want he will write to me GP and prescribe some different anti-acids!

Last week my acid went through the roof, the burning was horrendous and eating has become a chore.  So back to the doctors I went, a bunch of blood tests later and all she can tell me is I’m not Celiac and I’m doubling your dose of Esomeprazole and throwing in some Gaviscon for good measure.

By Thursday I was climbing the walls with the discomfort, and so I hit the internet!  It looks like I might be suffering from Gastritis or IBS or any number of fun filled things.  The only constant thing is a suggestion to alter my eating habits!  So far that means:

No more:
Spicy food
Fatty food
Sugary food

Or basically anything that is remotely tasty! No matter what I’m trying I’m still having the problem, when I suggested changing my diet the doctor just looked at me blankly and said, “I’ve told you you’re not Celiac, and you can’t keep cutting things out of your diet.”

Well duh!  I do know that! But until I can figure out how to stop this burning pain.  I just don’t know what to do, hell I can’t even get a proper diagnosis out of them.  I will admit she did say to me if this combination of drugs doesn’t work, she might think about writing to my consultant for advice.

So off I toddled to the net again and now I’m trying Slippery Elm and Aloe Vera juice in an attempt to ease the symptoms after Holland and Barrett suggested it, they even sent me to Boots to ask the pharmacist for advice.  When I told him what I was taking, he looked at me and said, “Hmmm that’s a strong combination, it should be helping.”  Well I hate to tell you buddy it’s bloody well not! He did also suggest a probiotic and peppermint oil, so at least he was more helpful than my doctor.

Now I’m sitting here gurgling away after my breakfast of porridge, followed by lunch of a baked sweet potato, carrots, a bit of broccoli, half a yorkshire pudding (which I’m starting to regret) and a piece of fish….and that’s another bloody thing I’m no longer a veggie because I need the protein. I’ve been a veggie since I was 18, and I’m hating every second of this.

I’m so sorry for bleating on, I know there are people out there with much bigger problems than this, but it’s really starting to get me down now.  I promise normal service will be resumed shortly, I still owe comments and I’m determined to finish editing a story that’s been sat on my lap top for months.

A16 is going to be so much fun if all I can eat is mashed potato!

Tags: ,
Current Mood: distresseddistressed
Dizzojay's Dean Dreamsdizzojay on February 28th, 2016 04:50 pm (UTC)
Oh damnit, that sucks. I hope you start to get some answers soon. Feeling unwell for such a long time gets so wearing, I can totally understand why you're fed up.

Take lots of care of yourself x
sasha_dragonsasha_dragon on February 28th, 2016 04:53 pm (UTC)
I'm getting a little fed up now, and i've decided to take matters into my own hands and try changing my diet. Which basically means as bland as hell, I just want to get this under control by May...and then I'll probably fall off the wagon.

Fingers crossed I can get something sorted.
milly_galmilly_gal on February 28th, 2016 05:02 pm (UTC)
Shit, that sucks out LOUD! *hugs* I'm sending you some much needed good vibes bb! ♥♥
sasha_dragonsasha_dragon on February 28th, 2016 05:05 pm (UTC)
I'm a tiny bit fed up at the moment. I just want to enjoy food again rather than view it as a necessary evil.
milly_galmilly_gal on February 28th, 2016 05:10 pm (UTC)
I completely get it, and if we can't enjoy anything else we should be allowed to enjoy food, so this sucks! There has to be a middle ground, right? Would you like Steve to dig in to his recipe books, see what he can find that might help?
sasha_dragonsasha_dragon on February 28th, 2016 05:17 pm (UTC)
There has got to be some middle ground, I'm just trying to find it. And I'll tale all the help I can get, so by all means if Steve has any good recipes I'll give anything a try.
milly_galmilly_gal on February 28th, 2016 05:23 pm (UTC)
I'll get Steve to have a mooch through his hundreds of recipe books, there has to be something, right?
Hermine Kurotowaherminekurotowa on February 28th, 2016 05:37 pm (UTC)
Oh honey, that's awful. I'm sorry I can't help.

sasha_dragonsasha_dragon on February 29th, 2016 08:48 am (UTC)
*Hugs* Thank you for that, I know there's not a lot people can do, but sometimes it's just good to vent.
CJ: Hospital Samreggie11 on February 28th, 2016 09:10 pm (UTC)
I suffer from GORD/GERD (Gastro Oesophageal reflux disease) as well and it can be horrific. It sounds very much like you have GORD. I sympathise completely. There are days and nights where it feels like hot lava has replaced my insides. But doctors should be able to find a PPI that works for you relatively easily. It may take three or four different meds until you hit the right one. It did for me, and I still get acid, just not as frequently. My doc also gave me some great advice about taking them. I was taking them before I went to bed and still waking up with horrendous acid. She told me to change my schedule and take it one hour before eating dinner and it works a treat. I also found that eating after 7pm is a no no. Certain foods set me off every damn time, so keep a food diary so you know what the worst foods are.

If though, you find that after a few different tries at medications that things aren't improving at all within a month or so, go back and demand more thorough testing. It's VERY rare, but there are other more insidious things that can cause similar symptoms. Once again, very rare so don't be alarmed, just be aware and vigilant with your health. Doctors aren't infallible no matter what they would have you believe, and sometimes you have to advocate for own health so they don't miss the forest for the trees. Please feel free to message me if you have any questions. I'm happy to talk you through things I've tried and experienced.

Be well, hon.

Edited at 2016-02-28 09:13 pm (UTC)
sasha_dragonsasha_dragon on February 29th, 2016 08:56 am (UTC)
Thank you so much for this, as I said I don't even have a proper diagnosis. On my endoscopy it mention some slight erosion of the esophagus, so it could be I GORD. The consultant's letter suggested he might suggest other anit-acids, but I get the feeling the GP will do nothing unless I ask them to.

Thank you for the offer of letting me message you, you might find me pooping up on your journal from time to time. I'm determined to get this sorted.
CJreggie11 on February 29th, 2016 11:18 am (UTC)
Any time, hon! If this get worse, or things don't improve, you make sure you keep on at the doctor to check everything thoroughly or even change doctors to one who doesn't need prodding. I've seen too many people end up with major health problems because their doctors kept shrugging things off without ever considering it might be something else, and because they're doctors, people just assume they know best. It sounds like they're doing right by you though as they've already given you tests and not just fobbed you off.

Have they tested you for Helicobacter pylori? They can test for it with a biopsy via gastroscopy, but the most common test is a Urea breath test because it's so much easier and less invasive than taking a tissue sample. It's a common bacteria that causes stomach ulcers and can be treated really easily with a combination of antibiotics and another medication. It's probably the most common cause of ulcers. Do you know if they took a sample or just went in for a look? With severe acid, the Urea breath test should be the first test they ask for before shoving tubes down your throat!

There's quite a number of various PPIs, so they'll most likely keep trialing them until you get one that works the best. As I said, even with the tablets I still suffer from acid, but it's usually if I eat the wrong thing, eat too late, or don't drink enough water, and a spoonful of antacid like Gaviscon settles it down. But for the most part the medication keeps it pretty much under control.

One other thing. Do you sleep on your side? If you do, make sure you only sleep on your left side not your right. If you sleep on your left you're keeping the junction between your stomach and your oesophagus above stomach acid level. If you sleep on the right it's below which will allow stomach acid to flow into your oesophagus. Just a little tip that really helps.

Until you get things under control you might have to sleep on your back propped up with pillows so that your shoulders are higher than your stomach. It will help keep your stomach acid in your stomach where it belongs. It takes a little getting used to but it will give you relief, and let you get some rest.
sasha_dragonsasha_dragon on March 1st, 2016 09:03 am (UTC)
I rang my doctor's yesterday and asked again what was wrong, they finally admitted as there was inflamation of the stomach lining it was gastritis. Also it does seem there might be another form of medication to add to what I'm taking, but obviously they don't seem to want to give me those....probably a cost thing.

I have been tested for Helicobacter Pylori and it came back negative, the doctor thinks I'm just unlucky as there is no obvious cause for my problem.

I'll keep trying to sort this out and thank you for the tip about sleeping on the left hand side. Thank lovely other half cane home with some planks of wood from his work yesterday, and now our bed is raised at the head to try and help.
CJreggie11 on March 4th, 2016 07:17 am (UTC)
Strange they won't give you meds that might help. Hope the bed propping works for you . :)
brightly_litbrightly_lit on February 28th, 2016 10:52 pm (UTC)
Oh, honey, how well I know your pain. I've had (sometimes quite severe) digestive problems for over a decade. Most of what ailed me seems to have been a combination of certain vitamin/mineral deficiencies, severe food allergies, and adrenal fatigue from a lifetime of intense stress. I'm not sure if anything I've done to help mine will help you, but I'm always here if you want info about things that have helped me. Just know it took me many years to begin to find solutions, but I finally did, and I feel so much better than I did even a year ago, it's amazing. I can sleep through the night now and everything. I'm sure you'll find yours, too, if you keep trying. Good luck!!!
sasha_dragonsasha_dragon on February 29th, 2016 08:58 am (UTC)
To be honest all suggestions are gratefully accepted, as I've said I don't actually have an official diagnosis, so I'm just flailing around in the dark. But I'm determined to get this under control and not spend the rest of my life living on mashed potato.
brightly_litbrightly_lit on March 1st, 2016 06:58 am (UTC)
I haven't heard anything good from any doctor about PPIs--in fact, most doctors I've spoken with say they don't help and ultimately only exacerbate the problem. I used natural antacids (the best was called "Anticid") before I found out it had to do with food allergies, and those worked well enough to at least let me go back to sleep when my stomach woke me up every night.

H. pylori (a good natural remedy that worked for me is mastic gum capsules) and candida (a very low-sugar diet for many months will eventually cure it--yes, I tried all this) are common stomach problems.

Vitamin and mineral deficiencies can really do a number on your body, so I recommend getting a full blood panel and seeing what it might have to tell you. Chemicals in food can be a big problem for many people, and stress seems to be the underlying factor in nearly every digestive problem I've heard about.

I know a lot of people don't believe in it, but homeopathy has worked wonders for me and my friend.

Finally, you might look into the allergies possibility. Allergies of any kind--to chemicals, to pollens, to mold, etc., can cause inflammation, which can cause many digestive problems. There's a wonderful allergy treatment in the U.K. called EPD if you find that has to do with it.

I hope this helps. Good luck. Let me know how it works out!